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Trapped in His Body for 12 Years, a Man Breaks Free (npr.org)
209 points by bribri on Jan 10, 2015 | hide | past | favorite | 22 comments


A warning to those who check comments first: this is a teaser, not the whole thing.



There is video on YouTube where he is interviewed, he still can't speak though but other than that he appears fine. Well, maybe not great he is in a wheelchair too.

https://www.youtube.com/watch?v=GBFntsxK-vc


If you read the original article and wanted the rest (not in annoying transcript form) here it is:

...

The short version is that over time, Martin slowly regained some control of his body. By the time he was in his mid-20s, he could squeeze your hand on occasion. And he was getting better and better at holding himself upright in his chair. Now, the doctors told his parents that he still had the intelligence level of a 3-month-old baby.

But one nurse, one nurse named Verna, was convinced that there was something there. And so she eventually convinced his parents to get Martin reassessed at another medical center, where he was given a test where he had to identify different objects by pointing at them with his eyes. And he passed, not with flying colors, but he passed.

Joan, Martin's mom, who came home to care for Martin, helped him with his physical therapy and most important, purchase this kind of joystick for the computer. A proximity switch, which is just something that you knocked. And though it took him about a year to get the hang of it...

Martin had like school - if you want to call it - four hours in the morning every single day. Once he did, everything changed because suddenly he had a way to select the words he wanted to say. "I am cold. I am hungry. I want toast." And as words came back, gradually, so did other things.

Martin started moving his eyes and moving his head and almost nodding, asking for coffee by stirring his hands around and things like that. Noone couldn't really explain it, but... when Martin gets the tools to communicate, he forges ahead.

So wherever you are standing in your life, prepare to be lapped. Within two years of passing that assessment test, Martin gets a job filing papers at a local government office. "I wanted to prove that I could do more than just speak words via a laptop."

Around this time, his nurse savior Verna mentioned she's having trouble with her computer. And Martin, who has not tinkered with electronics since he was 12 years old fixes it. Repairing a computer is a bit like going into a maze. You might go down dead ends. But eventually, you find your way through. It was absolutely flabbergasting.

After that he scraps the government job...

...Starts a web design company...

...Gets into college.

In computer science.

He writes a book.

He's learning to drive. He always wanted to drive.

Martin achieves everything he wants to do.

So how is it that Martin has been able to achieve all this? Now, I don't want it oversimplify it because it was many things - Martin's naturally strong will, flukes of electricity in the brain, a really dedicated family. But I do think that his decision to lean back into those thoughts way back when, instead of just spending his life detaching, in some way helped him, in part because it probably kept his mind occupied and allowed him to emerge this kind of well-oiled machine of mental ability, but also because I think his leaning into those dark thoughts in particular gave him a kind of self-understanding and humor about the human condition that allowed him to snag the very best thing in his life.

"My wife, Joanna." -Martin

"When Martin talks about me or types about me, he always starts smiling."

Joanna was a friend of Martin's sister. And the two of them first met over Skype. She was a manager for the social work team for a hospital social work team. She says the thing that drew her to Martin... "I turned around, and it was just this guy with this big smile. And it's such a warm personality." ... that was the way he began to interact with her.

"Unfortunately, I'm one of those people, I say something and then I, more often, need to say sorry I said it."

But not with Martin. When she asked him how things work in the bathroom or what people do around you when they think you are not there...

"If I ask Margin anything, he'll give me an honest answer." And that perked her ears. There's no pretend. That first night, they talked for hours.

She would speak, and Martgin would type my response. The sister and the other friends drifted away, and Joanna just stayed there in front of the screen. "I just really liked him." After that, she just kept wanting to Skype with him.

"Yeah. OK, well, he's in a wheelchair, and he doesn't speak. But I love this guy. He's amazing. It just so quickly turned into love."

As for Martin - after over a decade convinced that he would be alone forever, he was pretty happy. "My face would hurt from smiling so much." They were married in 2009. Martin was 33 years old.


[deleted]


And Stephen Hawking has a Pius XI gold medal for science. That first thing might not be all that related to the second.


For one, he's accomplished. Girls dig that.


One of the comments links to a Daily Mail article written by Martin, the subject of the story:

http://www.dailymail.co.uk/femail/article-2010610/The-Ghost-...


Thanks for the link. Martin's story is interesting, moving, inspiring and genuinely engaging -- particularly his account of his first successful communication with Virna. Also, I have the utmost respect for his parents and carers. They're the real heroes for humanity. I was delighted to read that after having endured such a long period of extreme isolation that Martin was lucky enough to meet -- and marry -- the love of his life.

This article is the first good one I've ever read on the Daily Mail web-site. However, I found that the lack of sections and some of the very short paragraphs made it more difficult to read. I know shorter sentences and paragraphs than would be used in a print are recommended when the medium is the web (something I try to do, myself) but I think the Daily Mail have taken that idea too far. The images / text to the right of the article content only add to the distraction -- though I presume that's an intentional aspect of the design.

Aside: While reading the article, I wondered for a while who was the "Diana" that he was referring to as she wasn't mentioned anywhere else in his story. Then I realised that he was referring to the deceased ex-wife of Prince Charles.

Finally, having to endure hours on end of Barney. That must have been hell.


I checked out the podcast cus it seemed like an unusual and interesting story and I wanted to find out more details. But the podcast is really bad, the editing, plinky piano music + the hosts constant schmaltzy comments.


agree - I thought the preview article was way better than the podcast


> That was his first strategy — disengaging his thoughts — and he says he got really good at it.

> "You don't really think about anything," Martin says. "You simply exist. It's a very dark place to find yourself because, in a sense, you are allowing yourself to vanish."

Isn't that what certain Eastern schools of thought advocate? To unite with the world, liberate from your ego, accept yourself as nothing more but a wave in the vast ocean of consciousness?


This is a good question. Just my two cents, but he says it is a "very dark place" which I assume means bad. If so, then there must be some resistance or dissatisfaction with his situation (not that I blame him). I think Eastern schools of thought advocate something similar (i.e. allowing your self/ego to vanish) but with complete acceptance of how things are, which leads to peace.


Voluntarily, yes. You can't force serenity on someone.


His story is featured on NPR's new Invisibilia podcast: http://www.npr.org/rss/podcast/podcast_detail.php?siteId=370...


It really reminds me of "Johnny Got His Gun" [1].

> He is a quadruple amputee who has also lost his eyes, ears, mouth and nose. He remains conscious and able to reason, but his wounds render him a prisoner in his own body.

Parts of this movie, btw, are included in the famous Metallica - One song.

1: http://en.wikipedia.org/wiki/Johnny_Got_His_Gun_(film)


There was a quite famous sci-fi short story, published in 1967, with a similar theme[1]: I Have No Mouth, and I Must Scream. Perhaps it was also inspired by the 1939 novel, Johnny Got His Gun?

[1] https://en.wikipedia.org/wiki/I_Have_No_Mouth_and_I_Must_Scr...


"I cannot even express to you how much I hated Barney," Martin says.

A deeper pit of hell is difficult to conceive.


This is very interesting because I think a lot of people think wisdom and personal self growth can only happen through human experiences, but just him sitting there thinking about it helped him grow as a person. It's amazing what the human mind can still do without the resources of a body.


Yes, how he viewed the society and what he absorbed while he was going through it in all these years, the experiences he had and how it affected his thinking/reasoning - a conversation with him about these would be a rare privilege. :)


I tuned into this as it was playing. I had to explain to my kids why I was laughing (it was in regards to how his face hurt from smiling when thinking about his wife -- I laughed because it was such a wonderful problem to have).


The story is remarkably similar to this Polish movie, based on a real story:

http://en.m.wikipedia.org/wiki/Life_Feels_Good


In a troubling world were people believe in facilitated communication this is not tackling this issue well at all.

There will always be a spiritual crazy pushing crazy beliefs, if he is legitimately talking, sadly this needs to be explained exactly why it's not the crazy 'facilitated communication'.

Any intelligent person on seeing the headline should think 'religious fever'. This article is not explaining why it's not the case.




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